
Here I am prior to my first conversation with Mom. I look too young to be speaking yet, but happy to be in her arms. I don't know exactly when I started talking, but my Mom didn't start talking until she was almost three years old. They thought something was wrong with her, but she was not ready yet and then one day she just started talking.
Mom originally went in the hospital on April 17th because she thought she was having a heart attack. That is what the doctor told my sister. It was not a heart attack, but it was pericarditis, which is inflammation of the tissues around the heart. This condition does cause chest pain. I talked to her doctor and he thought she would be out of the hospital the next day, but she was not.
They were having trouble getting her heartbeat under control. They kept mentioning A-fib which is short for atrial fibulation and means irregular heartbeat. When I looked it up online, it does say it increases the risk of stroke. The risk is seven times that of the normal population. They were giving her medication to try and control it, but they were having a hard time getting the medication to work. A third of all people who have strokes are people who have A-fib.
I guess I should have looked it up earlier online before the stroke so I would have been prepared, but can anyone be prepared--really?
I live in Calfornia and Mom lives in Missouri. I called her every day she was in the hospital. On the morning of April 22, the day she would have the stroke, I asked how she was doing and she told me she was exhausted. Her roomate had a "code blue" and the lights were on in her room most of the night and there were all kinds of people running in and out. She had requested a private room. She also wanted a private nurse and we worked out some of the details of that. She asked about my life and somehow we got on the subject of breastfeeding. She told me that she followed the regimen of breastfeeeding me every four hours because that is what the doctor told her to do. But, I was such a big baby and I was screaming for food. She felt so guilty listening to me scream. She should have fed me more often. I told her to let it go. I turned out fine. I said I loved her and would call her tomorrow and I hung up.
At eight-thirty that night California time, my sister called to tell me that Mom had a stroke and was in ICU. She was paralyzed on her right side, her throat was paralyzed so she needed a feeding tube and she could not speak. She was responding to yes/no questions with hand squeezes. I was totally in shock.
My first response was to fly back to St. Louis, but somehow that didn't feel right. My sister is doing an awesome job of dealing with things as well as Mom's cousin, Neal. I have been spending alot of time working with my inituition and my inner knowing so I decided to trust it and not try and figure it out. I have been living in a fog, going through the motions--shaky, rattled and overwhelmed trying to help my sister with as many details as possible.
I told my husband Michael that I wish I had known it was my last conversation before her stroke. I know it may not be the last conversation ever. The doctors have told me that she can work with a speech therapist to recover her speech, but they admit that it will be a while before she can talk again and when she does it will not be the same as before. Michael asked me what I would have said to her if I had known. He thinks if I all of a sudden had this "deep" conversation like she was going to have a stroke or die, she would not have liked that. What would I have said differently? I thought about that.
Maybe it would have gone something like this:
I love you Mom. Even though you started talking late in life, you clearly love the English language which I can see in your beautiful poetry and hear in your voice. I like how you pick out the most exquisite words with care. I am sorry I have taken for granted being able to talk any time we want.
I know how much you love me. You are always showering me with your love. I am so grateful for that and it really makes a difference in my life. I can feel your concern when you pray for me when I am sick and I can feel your love and excitement with every little accomplishment that I make. I love writing poetry with you and am grateful for the books of my poetry that you so lovingly put together each year on my birthday.
You did a good job Mom. We all make mistakes parenting, but I want you to know that you did the most important thing and that is letting me know that you love me. I always knew and I still do.
I talk to Mom in my head now. I have conversations with her throughout the day. I mostly tell her that I love her. I also share with her the little things--how pretty the flowers are in my yard, how Sarah is coming home from law school and I am looking forward to seeing her, how much I love my work and my life. It is a running dialogue in my head, but it is not the same...
My sister said that Mom's cell phone was ringing off the hook until everyone was told what had happened. Now it is up to us to guess what she would say, what she wants and what she needs.
Here is a poem she wrote during a free write we did together February 12, 2012 a month after she had a pacemaker put in her heart. It is in response to Marie Howe's poem Sometimes the Moon Sat in the Well at Night. Mom had no title to her poem, but I have taken the liberty of making one.
Sometimes my Heart Sits in the Well at Night
Sometimes my heart sits in the well at night
and sometimes the beat stirs too fast
and other times the water becomes still
as moonlight and begins to wobble
as if the wind blows through my chest
I feel the metal firm against my pidgin chest
and note the rocks where I have stumbled
and I realize this is no ordinary time,
this is a time where I value every moment,
every word, and notice the sheen of the time
machine and the valentines on my cup
every letter has meaning. I chose a therapist,
Alice Aslin as I liked the alliteration in her
name like all the w's in Howe's moon poem.
I noticed the full paper moon, the daytime
transparency and feel the floating thoughts
within my heart beating and the stiffness
in my body when I stand, walk or circle,
I circle each morning in Qi Qong and many
evenings, for the chi energy to move as it
moves like a wand through my heart and
the moons spill energy and I risk, push
myself like a broom walking to be engaged
in pools of light and activity, making metaphors
of fish images and sitting in the well of night
and knowing gratitude creates a happy skirt
but I want to swirl in the stream, paddle
through rivers, laugh about family, cooking
in tender as the bone and witticism of A Small planet,
all life's coincidences.